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Thanks for the advice so far.

Any more would be appreciated.
You could also ask folks in the Canada TSW Group on FB

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Long Term Vets Still in TSW / Re: Is TSW worth it ?
« Last post by Jamnat on April 29, 2017, 11:31:28 PM »

Thank you for coming back to update us on your wife's progress.

I started my TSW journey in January of 2013. So it's been over 4 years for me now and when I flare it is very stressful and upsetting because I think, WTF how much more are we supposed to unnecessarily suffer. Overall when I look back though I KNOW that when I was on TS for my eczema my overall health was deteriorating and I felt like the 2 choices I had both required me to suffer. Yet with TSW I'm convinced the suffering is in shorter term in the long scheme of life.

By all means I had NO IDEA what I was going to experience with TSW the suffering and withdrawal symptoms were horrible and much more intense than when I was TS, but it was a matter of getting the support I needed and to educate myself. I know if ITSAN didn't existed I wouldn't have the strength and courage to continue to stay strong and endure what my body had to go through to heal and get better.

Now my flares are more localized. The whole body flare hasn't happened for 2 since 2014 thank God. I have more energy, I can sleep and begin building my life again. I am also much more health conscious and feel like this chronic health issue made me a much more responsible for my health and I eat much better than I used to and do not take my health for granted anymore.

For those who are just starting I hope my testimonial helps. It is worth it. I am healing and I see it. I may post pictures to show my progress if that helps. But having vets guide me along and show their healing is what I needed to see when I first started to keep me going.

All the best,


I'm so sorry MJs Mom.

How has it been so far since August 2016? I've thankfully been flare free but it has happened again and started in March which is what brought me back to this forum.

I'm checking to see if there has been any new advice/insights I can use other than just having to wait it out again and let my body find it's balance.

I'm a true believer in finding ways to support our body's natural mechanism to heal since our 'usual (yet problematic) way of eating/being' is perhaps what triggered us to start the steroid creams to begin with.

TSW Symptoms / Re: Month 7.. chin looks like its going to fall off
« Last post by Jamnat on April 29, 2017, 10:35:24 PM »
Hi jtlevy,

Not sure if you've signed onto this forum since your last message. I just did now after a few years! Molybdenum can help but I've come to learn trying to do these things on my own isn't very helpful. I've made an appointment with a Naturopath affiliated with a teaching college in Canada in order to make it financially more accessible for me, otherwise I've incurred a lot of debt and financial hardship with going through TSW (2 years of de habilitating symptoms that prevented me from working when I first stared the withdrawal.

It would be helpful if you can find a good doctor who is willing to work and help you without pushing steroids or dismissing TSW.

I hope this helps!

I know what you mean about the car. I don't drive but the passenger seat in our car is covered. It's pretty embarrassing as it gets everywhere.

It's strange but that part of it embarrasses me more than the red swollen skin aspect. It gets all in the keyboards at work as well. Oh hum. 3 years in, it's got to end sooner or later surely.
The shredding haha that was supposed to be shedding. Although my skin has definitely felt shredded at times. 😐
Pam,  I also want to thank you so much for your dedication and hard work!  :thumb up:
Joey, I was sorry to read that you never hear much thanks these days. I am personally so thankful and grateful for all you and the other pioneers and hard workers of ITSAN have and are doing. I figured out what was going on with me thanks to terrifying tsw would be to go through and not know what was happening! The support and information have been invaluable. Thank you so very much from the bottom of my heart!  :smiley: :61_flower: :heart:
I sleep on a big beach towel which I carefully wrap up and take out to shake off as soon as I get up. This has allowed me to wash the sheets weekly or bimonthly, as I can quickly wash the towel in between the linen washings if need be. I also have a mini vacuum for quick clean ups when I don't have time to lug the big heavy one out. I am almost at 41 months, and the shredding has gotten significantly better. The flakes that get in my car sometimes really bother me though, I wish i had a vacuum in there. Good luck!
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