Hi Paul b,
Congratulations, it's an amazing feeling when you finally have a breakthrough. Every little thing in the world seems wonderful after the torture we've endured. It's certainly a roller coaster, one minute it's fine the next the itch is the most uncontrollable thing imaginable. I don't think anyone can understand it unless you've been through it. It's so difficult when people say, is your eczema flaring because it isn't eczema, it's something far more serious and makes us unable to function or even do small things, eczema doesn't have the same symptoms and do that to your body. I wish you lots of healing and hope you continue to get strong.
I only had steroids for a few weeks before I was hit with red skin syndrome and went through hell like most people on the forum. It's been 33 months now and I never thought it would be this long. I'd had masses of steroids as a child and as a very young adult and hadn't used them long term for years. The itch and symptoms which came back when I started using them again, were very familiar with previous times when I'd been prescribed them. I never really had a problem with the eczema much when I wasn't using steroids, and never thought a small amount would create so much damage. I'm sure it's the cumulative effect from the overdoses I had in my earlier years which caused it.
Still having flares but better than I was. My concern now is that my allergy ige levels are through the roof and at 11000 so pollen season causes absolute havoc with my skin. It's just off again on one of its nasty itching flares. Do you find you flare more in the pollen season?
Never mind we all need to keep strong.One day we'll be free completely of this. Happy healing and hope this is the last of it for you.