I don't post a lot but I'm on here reading a lot, especially during flares. I'm in my 19th month, I don't know if that makes me a "Long Term Vet" or not. Just wanted to share a really rough patch about a month ago.
We had unusually warm weather here in Iowa and a weekend in the 70's. I took advantage of it and spent a lot of time outside that weekend in just a t-shirt (I don't think I got any kind of sunburn). About 2 days later my arms got really tingly, swelled up, lost elasticity, and oozed every time it was touched. I could barely move my arms - and I wore long sleeves everywhere, even to bed. I woke up every morning with soaked arm sleeves (one of the grossest things I've experienced). That lasted about a 4 days. We were scheduled to go on a cruise that weekend. My arms healed ok by that time but my hands had cuts and sores all over, so I had to wear cotton gloves on our trip to Florida.
My skin was actually pretty good during the cruise - not much symptoms while on the cruise but I was out in the sun a lot. I thought this would be good for me as it seemed to help last summer - but the last full day of our cruise my knees started to get that tingly feeling. The day we got off the boat I had the same things happen to my legs that happened to my arms just 2 weeks prior. They swelled, got rough, oozed (wet pants almost constantly), etc... I was miserable walking off the cruise ship, walking/sitting in the airport, and on the flight home. All I could think about was how horrible I felt. This again lasted about 4-5 days and I didn't leave my couch for almost a week because of it (getting up, stairs, and just basic walking was a difficult chore).
It's about a month later now and I'm doing a lot better. Skin seems to be back to what is somewhat normal (not healed, just the new normal with extreme dryness, itchiness - worse when I sweat). I'm still jealous of almost everyone that I see with what appears to be perfect skin.
Kind of wondering if anyone has experienced the issue with sun exposure being bad and causing a huge flare? At 18 months in - this was by far the worst flare that I've had. I'm thankful that it didn't seem to last long but I'm worried about going out into the sun at all now. It's getting warmer here in Iowa and I love spring/summer months, but now I'm a little fearful of them.